Kristin received her MBA at The University of Alabama Huntsville and is currently the President of the PTEN Hamartoma Tumor Syndrome Foundation. Kristin's PTEN journey began after she was diagnosed with thyroid cancer in 2009. She researched her medical issues and later learned that she has a rare yet under-diagnosed hereditary cancer syndrome, PTEN Hamartoma Tumor Syndrome (PHTS). Kristin quickly realized that many physicians in her community had very little knowledge of PHTS and that getting a diagnosis was difficult; coupled with a lack of educational information, Kristin met a significant unmet need of the PHTS Community and started the PHTS Foundation in 2013. Kristin was twice nominated a Global Genes Champion of Hope by her peers and was appointed by the Governor of Alabama to serve on Alabama's Inaugural Rare Disease Advisory Council. Ms. Anthony was also nominated as an International Wego Health Patient Leader Hero Finalist and an American Cancer Society honoree. Kristin consistently works to advocate for PTEN families and all in the rare disease community, lobbying for policies that will benefit affected patients and families. Kristin serves on Vanderbilt University's Impact Study Advisory Board, Every Life Foundation's Community Congress, and the HL7 Patient Empower Group. Professional memberships include the National Organization of Rare Disorders, Global Genes, Alabama Association of Non- Profits, ASCO, NORD's Rare Cancer Coalition, Eurordis, and The Junior League Huntsville.
As a five-time cancer survivor and member of the PHTS Foundation team, Kristin works tirelessly to raise funds for PHTS research, to educate the public about the PHTS and the lack of necessary research funding for this rare disease. Serving as the PHTS Foundation leader, Mrs. Anthony assembled a world-class leadership team to help develop programming focused on meeting the PTEN patient community's needs and advancing research. The PTEN Foundation team, in collaboration with PTEN Italia, recently launched a successful IRB-approved patient-powered registry.