We are curious if data is available giving lifetime patient history of drug prescriptions and health outcomes.
The idea here is to see if NF1 patients that happen to be prescribed drug X,Y or Z for some non-NF1 issue also happen to do better or worse with an NF1-related issue.
We understand this is unlikely because it would require extensive, combined and unified data collection over the life of the patient, which is just sort of happening nowadays, but anyway, that's the ask.