Hi! I am starting to work with the Project GENIE data; I had originally thought from reading that you had clinical, treatment, and outcome data on your large cohorts, which would be very exciting. Upon perusing the data, it appears this type of data is only available for very small cohorts (e.g. the ATK1 cohort of 428). Is this accurate? Do the centers submit treatment and outcome data for the larger cohort and is there any way to use that data (subject, of course, to all applicable HIPAA and privacy regulations)? Will that data become available at some point in the future? Is it possible to partner with GENIE or the centers to work on this data in a mutually beneficial fashion?
Created by Datauser Hello,
Apologies for the delay in response. I am unsure of the answer and am trying to find out.
Best,
Tom
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